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Education and Advocacy
We will raise awareness among China's top osteopathic specialists
on treatment options for OI, through a symposium that the Foundation
will sponsor. We will invite Dr., M.D., Director of Pediatric
Bone Program at Center for Endocrinology, Disabetes and Metabolism
at Childrens Hospital Los Angeles. Dr. Duke is a professor at
UCLA Medical School and leading expert in OI.
To help enable parents, care-givers and medical specialists a
better understanding of how to provide and take care of a child
suffering from OI, the Foundation has translated 2 booklets published
by the OI Foundation in the United States.
The 2 Booklets, Therapeutic Strategies for Osteogenesis Imperfeca
and Caring for Infants and Children with Osteogenesis Imperfecta
are distributed freely to parents and medical specialists who
treat OI children in China.
This material has proved invaluable to parents and care-givers
in preventing the frequency of fractures and in alleviating the
suffering and distress following painful fractures.
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